Frequently Asked Questions About Palliative Care
Palliative care may be right for you if you are experiencing pain, stress and other symptoms due to a serious illness. Serious illnesses include but are not limited to: cancer, cardiac disease, respiratory disease, kidney failure, Alzheimer’s, AIDS, amyotrophic lateral sclerosis (ALS) and multiple sclerosis. Palliative care is appropriate at any stage of a serious illness and you can get it along with treatment meant to cure you.
- Pain and symptom control: Your palliative care team will identify your sources of pain and discomfort. These may include problems with breathing, fatigue, depression, insomnia, or bowel or bladder. Then the team will provide treatments that can offer relief. These might include medication, along with massage therapy or relaxation techniques.
- Communication and coordination: Palliative care teams are extremely good communicators. They put great importance on communication between you, your family and your doctors in order to ensure that your needs are fully met. These include establishing goals for your care, help with decision-making and coordination of care.
- Emotional support: Palliative care focuses on the entire person, not just the illness. The team members caring for you will address any social, psychological, emotional or spiritual needs you may have.
- Family/caregiver support: Caregivers bear a great deal of stress too, so the palliative care team supports them as well. This focused attention helps ease some of the strain and can help you with your decision making.
You can expect to have more control over your care and a comfortable and supportive atmosphere that reduces anxiety and stress. Your plan of care is reviewed each day by the palliative care team and discussed with you to make sure your needs and wishes are being met and that your treatments are in line with your goals. You can also expect relief from symptoms such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite and difficulty sleeping. Palliative care addresses the whole person. It helps you carry on with your daily life. It improves your ability to go through medical treatments. And it helps you better understand your condition and your choices for medical care. In short, you can expect the best possible quality of life.
Most insurance plans cover all or part of the palliative care treatment you receive, just as with other hospital and medical services. This is also true of Medicare and Medicaid. If costs concern you, a social worker or financial consultant from the palliative care team can help you with payment options.
The palliative care team provides an extra layer of support and works in partnership with your primary doctor. Your primary doctor will continue to direct your care and play an active role in your treatment.
Absolutely. Your treatment choices are up to you. You can get palliative care at the same time as treatment meant to cure you.
Everyone involved! Patients as well as family caregivers are the special focus of palliative care. Your doctors and nurses benefit too, because they know they are meeting your needs by providing care and treatment that reduces your suffering and improves your quality of life.
Palliative care can be available in a number of places. These include hospitals, outpatient clinics, long-term-care facilities, hospices or home.
Usually a team of specialists, including palliative care doctors, nurses and social workers, provide this type of care. Massage therapists, pharmacists, nutritionists and others might also be part of the team. Generally, each hospital has its own type of team.
After discharge from the hospital, you, your doctor and the palliative care team can discuss outpatient palliative care. Some hospitals also offer outpatient palliative care even if you have not been in the hospital. Check with your doctor.
Palliative care is for anyone with a serious illness. You can have it at any age and any stage of an illness, and you can have it along with curative treatment. It is not dependent on prognosis.
Hospice is an important Medicare benefit that provides palliative care for terminally ill patients who may have only months to live. People who receive hospice are also no longer receiving curative treatment for their underlying disease.
Ask for it! Start by talking with your doctor or nurse.